So it’s that time of year, everyone is going back to school, work and university. I will be starting my first year in university very soon and can not wait however there is a lot that needs to be done before you actually start at your chosen university, you will need to:
- Write your personal statement
- Visit university open days
- Look into courses
- Apply via UCAS
- Student finance
- Other support
- Select your choices
- Head to university
Now that might not seem like a lot to do but the more prepared you are the faster you will have everything sorted. I’m not going to discuss everything within one post. I will be posing about them sepratly so they will be further up on my blog, I will also link them to this page using the bullet points above as I have wrote each post.
Hope you find this interesting
Wow! Its been a long and busy year, since my last post its been manic in college to get all our work in, but I’ll be finished in 2 weeks 😀 Iv also got a very good part time job and am going to London next Saturday with my good friend Helen Thompson (@helst) to go and be route marshes for the Crohns and Colitis UK London walk!
Now, my friend Helen has sent up an e-petition for a very good reason, Helen sufferers from Ulcerative colitis (UC) and after being well for years is now unfortunately not doing so well! Helen has set up this e-petition after being told by her consultant that she will only be allowed 3 infusions of infliximab before having to consider other options, as Helen knows that infliximab works so well for her self to get her into remission only being alound 3 doses is silly and therefore this e-petition has been set up.
We need 100,000 segnatures to help towards getting this debated in the House of Commons.
I’m sure Helen isn’t the only person who has been through this so if you could all sign and share this e-petition I would be really greatful as I am sure Helen and every other UC patient would be!
“Reverse the decision of only allowing/funding 3 rescue therapy doses of Infliximab for the treatment of Ulcerative Colitis in severely active cases (TA163 of NICE) & allow it to be used for maintenance of remission & control of this chronic illness”
Just though I would give a quick update on how I have been lately. So since my last post I have began dancing again and it is going very well, I am also progressing very well through college and am up to date with all my work, also had an amazing 18th birthday last week, I started with a lovely family meal on the 16th Feb, then on the 17th I had a lovely evening with a fellow IBDer Helen Thompson, then on the 20th I went to see the Lego movie with a couple of friends, 21st I had a lovely meal and drinks with my friends from college and of course my twin brother, the last event if our birthday was a trip to London with Matthew (twin) and Chris (older brother) we had an amazing day going around london .
I have had an amazing birthday week with it being half term.
I am hoping everyone is doing well.
Well Christmas day has gone for another year and what a good one this year was.
Last year was so different to this year, this time last year I was on a liquid diet and unable to eat after my very first flare and a hospital stay. This year was 100% better, one lovely big roast dinner and lots of chocolates, I can feel the pounds piling on as I’m typing. At the moment am 7st 4lbs compared to last years 4st 10lbs. OK so I know I’m looking back onto last year however I can not believe how much has happened in 1 year and how much in my life has change. So last look back on this year, I suppose I could describe it as the good, the bad and the ugly, just not in that order, so the year started off bad, unable to eat and on steroid’s, things did slowly improve but we then move to the ugly, a second flare, this time kicked off by a meal out with my mum and dad, or the chocolate fudge cake I had, which then goes to the ugly, another trip to a&e with bring sick and bad pain, which then went into another hospital stay and an ng tube, which makes it to a good, while I had my feeding tube in I was pain free and gaining weight, after 12 weeks with a feeding tube it was operation time, although that caused me a lot of worry however after the day of surgery and some pain things got even better and everything has been great every since. Knowing how well I am and the fact I’m in remission means a lot going into 2014.
Anyway 2014 is going to be a great year, 18th birthday to start with lots of college with amazing people and the rest of the year with the crohns and colitis Mersey group and all the events we have coming up and just amazing times with my family.
Hope you all had an amazing Christmas and boxing day and you all have a happy and healthy 2014
This is me reaching 3000 views and I thought I would make it a special one so I am going to post some IBD blogs to spread the word of IBD, raise more awareness and also to show how every one persons story is different.
Dave Has UC
David was diagnosed with Ulcerative colitis and is writing about the “Tales of a man, with UC, who just won’t let it get him down”
My Gut Feelings
Daniel was diagnosed with Ulcerative colitis in 2013 and is sharing his experiences of newly diagnosed IBD’er and is “Lifting the lid on my on-going experience of Inflammatory Bowel Disease…”
Being Chronically Beautiful
Jack was diagnosed with Crohn’s disease in 2004 and is writing the “Chronicles of an old soul who got sick and changed forever”
Happy, Healthy Holly
Holly was diagnosed with Crohn’s disease in 2003 and writes about “A day in the life of crohns” http://www.happyandhealthyholly.blogspot.co.uk/?m=1
The Stolen Colon
Stephanie was diagnosed with Crohn’s disease in 1999 and writes about “Living beautifully with and ostomy” http://stolencolon.com/
IBD and Me
Claire was diagnosed with Crohn’s disease in 2005. Her blog is a “personal journey living with Crohn’s disease” http://ibdandmeuk.blogspot.co.uk
It’s been nearly 2 weeks since The Crohns and Colitis UK mersey Group walk.
Starting off, we were all prepared for a rainy day especially how bad it was the few days running up to the walk. But luckily we where is for a nice day, no rain in sight all day, great conditions for walking in.
We all set off on our walk, which was approx 1.5 miles. The nice walk around the marina and along side Crosby beach was lovely for a Sunday afternoon.
Even Mr R H Ted enjoyed the nice walk and views. But can you see him?
After a lovely walk around the Marina and even seeing my Maths teacher on the way round. We where back at the Lakeside bistro.
Back at the bistro it have us a chance to warm up and have a chat to all the other people who turned up and we also all got a certificate for completing the walk. The picture below is a family photo 🙂
We all had to be very carful Mr Ted didn’t take off. He was enjoying the helium balloons too much!
This all in all, everyone had a brilliant day and enjoyed every minute.
More updates of Mersey Groups event will be popping up here. If you live in Mersey side or fancy coming to the event feel free!
You can still sponsor me and my family at www.justgiving.com/Middletonfamilywalk
I haven’t been able to write about the Crosby marina lakeside walk for crohns and colitis uk. That post to let you all know will most probably be tomorrow 🙂 so keep watching.